Researchers in the field of intellectual/developmental disabilities (I/DD) believe there are at least 180,000 older adults with I/DD in the US. Of these people, 11,000 will be affected by dementia. Most people with I/DD in general are as likely as older adults without disabilities to have dementia. However, people with Down syndrome are more likely to have dementia in their life, with 30-40% of people with Down syndrome having dementia by age 50. The average age of the ‘onset’ – that is, when we first notice changes – in adults with Down is age 52. This percentage increases as people age.

People with intellectual/developmental disabilities (I/DD) may experience the challenges of dementia in different ways than people without disabilities and older adults. All changes for a person with I/DD should be considered in relation to the abilities they had previously – their baseline. Family, friends, and trusted staff who see a person daily are often the experts in recognizing and noticing these changes.

See our new resource directory.

Join us at these two training opportunities:

FLYER WITh details of june 4 focus groupJUNE 4: Tell Us What You Think about Alzheimer’s and Down syndrome (Download and share our flyer.)

The Wisconsin Campaign for Alzheimer’s Awareness is hosting a Focus Group Discussion with Self-Advocates* and Families

We know people with Down syndrome are at great risk to develop Alzheimer’s.

We want to know:

  • How would you like to learn about Alzheimer’s?
  • What are helpful ways to support you and your family?
  • How would you like to take charge of your health?

Sponsored by The Arc Wisconsin; Down Syndrome Association of Wisconsin; Alzheimer’s Association; Wisconsin Upside Down

Join our Focus Group:

Tuesday, June 4

6-8:00 PM

Down Syndrome Association of Wisconsin

11709 W Cleveland Ave, Suite 2
West Allis, WI 53227

Pizza and other refreshments provided.

You Must register to tell us you are coming:

*Recommended age 15+

**This discussion will occur during DSAW’s regularly scheduled Life Skills Bootcamp

Questions: Call The Arc Wisconsin at 608-422-4250

flyer showing dates and location of training - same text as below

JUNE 5: The Wisconsin Campaign for Alzheimer’s Awareness presents a training for Professionals (Download and share our flyer.)

10 Warning Signs of Alzheimer’s for People with Intellectual/Developmental Disabilities

Presented by experts from:

The Arc Wisconsin and the Alzheimer’s Association l Southeastern Wisconsin

Wednesday, June 5

2-3:30 PM

My Choice Family Care Inc.

10201 W. Innovation Dr. Suite 100

Wauwatosa, WI  53226

 

Seating is Limited!

RSVP to save your spot: https://forms.gle/56QcqDtNz581zoBB9

Training will also be made available through a GoTo meeting (remote) option.

Questions: Contact The Arc Wisconsin info@arcwi.org